On Monday we held a workshop about the Oxfordshire Transforming Care Plan for people with learning disabilities and family carers.
The Oxfordshire Transforming Care Plan aims to improve services for people with learning disabilities and/or autism, who display behaviour that challenges, including those with a mental health condition.
This will enable more people to live in the community, with the right support, and close to home.
My Life My Choice has been working alongside Oxfordshire Family Support Network, Autism Oxford, and the Oxfordshire Clinical Commissioning Group to put together the Transforming Care Plan.
On Monday we told more people with learning disabilities and family carers what we had done, and asked for their feedback.
We talked about our vision…
- A good, meaningful and “ordinary” life.
- The right person-centred support close to home.
- Choice of care – and families and people should be able to design and buy their own services, when they choose to.
- Equity – access to health services when you need them.
- Early intervention and prevention for children and families leading to continuity of care when preparing and / or moving into adulthood.
- Positive behaviour support throughout our services.
- Effective management of crises – spotting them early; avoiding hospital admission wherever possible; planning ahead for future crisis.
We talked about the Transforming Care Plan aims…
Overall: To enable people with LD and / or autism to have a good, meaningful and “ordinary” life.
- To improve people’s physical and mental health, including the effective prevention and management of crises.
- To improve the quality of support.
- To help people stay safe and out of trouble.
- To enable people to have an active voice and role in their community, including employment.
- To improve support for families and carers.
- To improve the continuity of care for children and families when preparing and / or moving into adulthood.
- To improve early intervention and support for children and families.
- To improve people’s housing options and choices about where they live.
And we talked about the principles that underpin these aims…
- Our approach is all family, all age, holistic, and multi-disciplinary (everyone working together).
- Treating everybody equally doesn’t mean treating everyone the same (equity not equality).
- Growing the things that we have, that we need more of.
- Behaviour always means something (because it is always a form of communication).
- Better understanding and communication of care plans.
- Being positive about risk taking, but managing this well.
- Behaviour is not an illness.
- Autism is not an illness.
- Mainstream services should be person centred and meet individual needs.
- Co-production in development and management of services.
- Involving experts by experience in helping us understand and manage difficult / complex cases.
- We don’t give up on anyone.
- We see the person, not the disability.
After hearing about the plan, people had the chance to have their say on a number of discussion questions.
The questions were:
- Are health services accessible to people with autism and/or LD? What would make these services better?
- What does Transforming Care need to do for children and young people with autism and/or LD?
- Do mental health services need to change to meet the needs of people with autism and/or LD and their families?
- How can we make sure everyone has safe care that is of good quality?
- What support do people with autism and/or LD need to stay out of trouble and safe?
- How can we get the right housing for people with autism and/or LD / challenging behaviours/mental health needs – what can commissioners do/what can families do/what can providers do?
- If you had a magic wand, what would your dream world look like for people with autism and/or LD and/or mental health needs?
- What works now?
- What is not working?
- What does good support look like?
People wrote their answers on paper and stuck them to the wall. Here are some of them…
We also watched some videos of people talking about their experiences of services.
Here is what My Life My Choice member Paul Scarrott shared with the group: