In June 2018, the Oxfordshire Safeguarding Adults Board published its annual report on the deaths of Oxfordshire people with a learning disability between April 2017 and March 2018.
Following this, the two co-chairs of the Oxfordshire Transforming care Board, Paul Scarrott (My Life My Choice trustee) and Gail Hanrahan of Oxfordshire Family Support Network produced the joint Statement from the Oxfordshire Transforming Care Partnership Board in response to the report. Paul and Gail said that “the Learning Disability Mortality Review report made for grim reading and was deeply upsetting”. Their statement concluded that “there is still much work to be done” but that it is good that “all deaths are now being reviewed in such detail”.
The national Learning Disability Mortality review found that people with learning disabilities died from different things to the rest of the population, and that they died younger. This national review also points out that most of the learning points have been identified before, suggesting that at the national level services are not changing quickly enough to deliver better care.
Local findings were different however, the report shows that in Oxfordshire people with learning disabilities generally die of the same conditions as the wider population and, although they do still die younger than the wider population, over half died aged 60 or above and a third died aged 70 or above.
Here at My Life My Choice we have been involved in the movement to transform care services for many years including the justice for LB campaign, the Transforming Care Partnership Board, Quality checking services and helping co-produce services with many different organisations. We are pleased to hear the in Oxfordshire there are many improvements in care for people with learning disabilities, but we know that there is still a long way to go.
The next steps identified in the report are to build the learning from the report into the Transforming Care Plan, which we are a part of as our Trustee Paul Scarrott is co-chair. The report also recommends involving ‘experts by experience’ in the review process, something My Life My Choice I already doing.
Overall, we are very pleased that the deaths of people with learning disabilities in care are being investigated so seriously, and that the lessons learned are being included in the Transforming care plan.
You can read the full annual report at:
or check out Transforming Care’s response at: