In 2017, Dr Lee Humber received Heritage Lottery Funding to find out about the role that people with learning disabilities played in the First World War. He approached My Life My Choice, who recruited three young people with learning disabilities - Tommy, Shane and Tyrone - to be part of the research team. The researchers have been supported by Jess Tilling, Power Up Coordinator at MLMC.
Transforming Care is the government’s national programme to improve services for people with learning disabilities and/or autism, who display behaviour that challenges. The aim is to make sure more people are living in the community, with the right support and close to home.
Over the past 18 months, members of the Power Up team have been carrying out research into the contribution people with learning disabilities made during World War 1, in partnership with Lee Humber from Ruskin College.
As well as saying “Don’t Lock Us Away” our Champion’s group are thinking about what good support in the community is. This means visiting other services and charities, and meeting the people who they support.
Yesterday the Oxford self-advocacy group learnt all about being safe on the internet. This is because our Power Up trainers have joined forces with Thames Valley Police to deliver internet safety training to all of our groups.
Following the Dispatches Documentary Under Lock and Key, the My Life My Choice Champion’s group have been running a campaign about people with learning disability in long stay hospitals. This is what they have been up to…
We’re very excited to have been awarded The Queen’s Award for Voluntary Service. Described as the MBE for volunteer groups, it is the highest award given to local volunteer groups across the UK to recognise outstanding work done in their own communities.
Katie is 19 years old and works at the Oxford Yellow Submarine café once a week. Before being part of Travel Buddy, her mum drove her to work. But after a couple of months of doing the journey with her Travel Buddy, Dawn, she can now do the journey alone.
On Friday we put on an event with Oxfordshire Family Support Network (OxFSN), Autism Oxford, and Oxfordshire Clinical Commissioning Group (OCCG) to inform people about what’s happening to services and gather their views on how to make things better.
Some citizen journalism from My Life My Choice Champions, after the BBC ran out of time to hear their views. Paul Scarrott, Michael Edwards and Kevin Preen share their views on the resignation of Katrina Percy and what comes next.
Yesterday we met Kim Arnold from Choice Support, who came to give us training so we can take part in Care Quality Commission (CQC) inspections as “experts by experience” – people who have direct experience of using health and social care services.
Members of My Life My Choice are currently serving on two different NICE Guideline Committees – People with learning disabilities and challenging behaviours: Guide for services and Care and support of older people with learning disabilities – alongside professionals, academics, and family carers. For the next 2 years we will be looking at evidence and answering questions about the two topics.
When we met Mike Petter, Chairman of Southern Health NHS Foundation Trust, in November he could not tell us how much money Southern Health NHS had spent on legal fees relating to Connor Sparrowhawk’s death and his inquest.
After an exchange of letters, Mike Petter, Chairman of Southern Health NHS Foundation Trust, came to meet us to talk about Connor Sparrowhawk and the sale of Slade House. With him were Claire Feehily, a non-exec Director at Southern Health and the Chair of Healthwatch Gloucestershire, and Jason Warner, Lead Nurse for Oxford’s Learning Disability Team.
At My Life My Choice we’re all about people with a learning disability speaking up for themselves. So here are quotes from some of our self-advocacy group members, explaining the impact attending a group has had on their lives.